Attachment 1A - Table of Proposed Changes
Note:
Text
being deleted represented by red
strikethrough text,
text being added represented by blue
text.
Type of Change |
Page(s) |
Original Text |
Requested Change |
Editorial change: Revise contact information |
i |
Maternal and Child Health Bureau Division of State and Community Health 5600 Fishers Lane, Room 18N35 Rockville, MD 20857 |
Maternal and Child Health Bureau Division of State and Community Health 5600
Fishers Lane, Room Rockville, MD 20857 |
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iii |
Through the MCH Block Grant, each state and jurisdiction supports and promotes the development and coordination of systems of care for the MCH population, which are family-centered, community-based, and culturally appropriate. |
Through
the MCH Block Grant, each state and jurisdiction supports and
promotes the development and coordination of systems of care |
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iv |
The revised framework addresses social determinants of health, provides more choices for national performance measures (NPMs) for each domain, and introduces a standard set of measures that can be used as state performance measures, if the state so chooses. |
The
revised framework addresses community
factors that influence health outcomes
|
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iv |
Greater Emphasis is placed on health equity as a guiding principle of the Guidance. This Guidance introduces concepts from the Blueprint for Change: A National Framework for a System of Services for Children and Youth with Special Health Care Needs to advance the vision that CSHCN enjoy a full life and thrive in systems that support families and their needs while ensuring dignity, autonomy, and active participation in communities. |
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iv |
Shirley Payne, PhD, MPH Director, Division of State and Community Health Maternal and Child Health Bureau Health Resources and Services Administration 5600 Fishers Lane Rockville, Maryland 20857 Telephone: (301) 443-2204 |
Maternal and Child Health Bureau Health Resources and Services Administration 5600 Fishers Lane Rockville, Maryland 20857
|
Addition to reflect 2024 change in statute, Section 501(a)(1)(B) |
1 |
To reduce infant mortality and the incidence of preventable diseases and handicapping conditions among children, to reduce the need for inpatient and long-term care services, to increase the number of children (especially preschool children) appropriately immunized against disease and the number of low income children receiving health assessments and follow-up diagnostic and treatment services, and otherwise to promote the health of mothers and infants by providing prenatal, delivery, and postpartum care for low income, at-risk pregnant women, and to promote the health of children by providing preventive and primary care services for low income children; |
To reduce infant mortality and the incidence of preventable diseases and handicapping conditions among children, to reduce the incidence of stillbirth, to reduce the need for inpatient and long-term care services, to increase the number of children (especially preschool children) appropriately immunized against disease and the number of low income children receiving health assessments and follow-up diagnostic and treatment services, and otherwise to promote the health of mothers and infants by providing prenatal, delivery, and postpartum care for low income, at-risk pregnant women, and to promote the health of children by providing preventive and primary care services for low income children; |
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2 |
These principles are: 1) delivery of Title V services within a public health service model; 2) data-driven programming and performance accountability; 3) partnerships with individuals/families/family-led organizations (hereafter referred to as family partnership) to ensure systems and services that support the interests of all MCH populations; and 4) health equity and assurance that all MCH populations achieve their full health potential. |
These
principles are: 1) delivery of Title V services within a public
health service model; 2) data-driven programming and performance
accountability; 3) partnerships with
individuals/families/family-led organizations (hereafter referred
to as family partnership) to ensure systems and services that
support the interests of all MCH populations; and 4) |
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3 |
The Public Health National Center for Innovations (PHNCI) and the De Beaumont Foundation engaged the public health field in a 2020 review and update of the 10 Essential Public Health Services framework to better reflect current and emerging public health practice needs. The revised framework was released on September 9, 2020, as reflected in Figure 1. More information on this work can be found on the PHNCI website at https://phnci.org/national-framework/10-ephs. |
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3 |
Figure 1 |
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3 |
(1) Conduct ongoing assessment of the changing health needs of the MCH population to drive priorities for achieving equal access and equity in access and positive health outcomes; |
(1)
Conduct ongoing assessment of the changing health needs of the
MCH population to drive priorities for improving
positive health outcomes and reducing disparities for MCH
populations |
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4 |
(6) Integrate systems of public health, health care and related community services to ensure equitable access and coordination to achieve maximum impact; |
(6)
Integrate systems of public health, health care and related
community services to ensure |
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4 |
(8) Educate the MCH workforce to build the capacity to ensure innovative, effective programs and services and the efficient and equitable use of resources; |
(8)
Educate the MCH workforce to build the capacity to ensure
innovative, effective programs and services and the efficient |
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6
|
(2) Social determinants of health |
(2)
|
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6
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(3) Health Equity; (4) Organizational change; (5) Workforce development; and (6) Enhanced data infrastructure |
|
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6
|
CSHCN is the third legislatively defined MCH population. This latter population is inclusive of children and youth with special health care needs. |
CSHCN
is the third legislatively defined MCH population (and
includes children and youth).
|
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6
|
The measure domains include: 1) clinical health systems; 2) health behaviors; and 3) social determinants of health |
The
measure domains include: 1) clinical health systems; 2) health
behaviors; and 3) |
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6
|
Addressing the maternal health crisis is a HRSA priority, as well as a state-level priority more broadly; therefore, for this Guidance, Postpartum Visit is the first Universal NPM. |
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6
|
The second Universal NPM is Medical Home, selected in the CSHCN, Child, and Adolescent population health domains, which is intended to drive improvement in the core CSHCN outcome, Well-functioning system of care, as well as access to quality health care for all infants, children, and adolescents |
The
second Universal NPM is Medical Home, selected in the CSHCN |
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6-7 |
The American Academy of Pediatrics (AAP) specifics seven qualities essential to medical home care, which includes accessible, family-centered, continuous, comprehensive, coordinated, compassionate and culturally effective. |
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7 |
States have the flexibility to select as many NPMs and SPMs as necessary to address each of its priority needs including the other NPMs within the Women/Maternal Health, Child Health, Adolescent Health, and CSHCN domains |
States
have the flexibility to select as many NPMs and SPMs as necessary
to address each of its priority needs including the other NPMs
within the Women/Maternal Health, Child Health, |
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8 |
Social Determinants of Health |
|
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8 |
Social Determinants of Health |
|
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8 |
Social Determinants of Health |
|
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8 |
Social Determinants of Health |
|
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9 |
Transition |
Transition To Adult Health Care |
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9 |
Social Determinants of Health |
|
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9 |
The same measure can be selected in multiple domains (Perinatal Care Discrimination, Housing Instability, Preventive Dental Visit, Transition, and Bullying), but will only count once toward the requirement of a minimum of five NPMs and one per domain. |
The same measure can be selected in multiple domains (Perinatal Care Discrimination, Housing Instability, Preventive Dental Visit, Transition To Adult Health Care, and Bullying), but will only count once toward the requirement of a minimum of five NPMs and one per domain. |
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9 |
Expanding the capacity of both families and Title V is crucial to building family partnerships. |
Expanding
the capacity of both families and Title V is crucial to building
|
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10 |
Relevant resources include, but are not limited to, the National Consensus Standards for Systems of Care for Children and Youth with Special Health Care Needs, authored by the Association of Maternal and Child Health Programs Version 2.0 (2017); a series of reports and case studies entitled, Sustaining and Diversifying Family Engagement in Title V MCH and CYSHCN Programs (AMCHP, 2016) and the Family Engagement in Systems Assessment Tool (FESAT) and Family Engagement in Systems (FES) Toolkit developed and released by Family Voices in 2019/2020. |
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10 |
The Blueprint for Change: A National Framework for a System of Services for Children and Youth with Special Health Care Needs outlines principles and strategies in four critical areas to advance the system of services. Specifically, the Family and Child Well-being and Quality of Life domain describes principles and strategies that prioritize quality of life and well-being for CSHCN and their families. See the Title V Block Grant Technical Assistance Resources at: https://mchb.tvisdata.hrsa.gov/Home/Resources for more information. |
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10 |
(1) Assure families and individuals are key partners in health care decision-making at all levels across the health care system and the services that support them, especially those who are vulnerable and medically underserved, including efforts to engage diverse families and family-led organizations; |
(1)
Assure families and individuals are key partners in health care
decision-making at all levels across the health care system and
the services that support them, especially those who are
|
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10 |
(2) Provide training, both in orientation and ongoing professional development, for program staff, family leaders, volunteers, contractors, and subcontractors; in the areas of addressing bias, discrimination, and cultural/linguistic competence; |
(2)
Provide training, both in orientation and ongoing professional
development, for program staff, family leaders, volunteers,
contractors, and subcontractors; |
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10 |
(3) Collaborate with community leaders/organizations and families of every background in needs/assets assessments, program planning, service delivery and valuation/monitoring/quality improvement activities. For more details on critical partnership, reference the Blueprint for Change: A National Framework for a System of Services for Children and Youth with Special Health Care Needs, which outlines principles and strategies to advance the system of services; and |
(1)
Collaborate with community leaders/organizations and families |
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10 |
(4) Measure the engagement of families and communities. For more details on measurement, reference the Family Engagement in Systems Assessment Tool (FESAT) and the Blueprint for Change: A National Framework for a System of Services for Children and Youth with Special Health Care Needs, which outlines principles and strategies to advance the system of services. |
(4)
Measure the engagement of families and communities. |
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11 |
D. Health Equity Title V MCH programs support access to quality services and service delivery for all MCH populations to achieve their full health potential. The focus on advancing health equity is at the center of Title V’s work and highlights efforts improving equity and promoting fairness of services for the MCH populations, as states address their health care priority needs. Advancing health equity requires valuing everyone equally; making meaningful progress on mitigating or eliminating systemic barriers, such as poverty, racism, ableism, gender discrimination, and geographic disparities; and aligning resources to eliminate health and health care inequities. Addressing health equity includes focusing on major upstream drivers of health for MCH populations and integrating and centering the lived experience of diverse individuals, families, and communities into policy and program planning, implementation, and monitoring. This Guidance communicates this principle throughout the sections of the document. |
D.
Title
V MCH programs support access to quality services and service
delivery for all MCH populations to achieve their full health
potential. The focus on |
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13 |
D. Nondiscrimination [Section 508] All Title V programs and activities funded in whole or in part are considered to be programs and activities receiving Federal financial assistance and subject to Federal nondiscrimination statutes. [Section 508(a)(1)]. These statutes include prohibitions against discrimination on the basis of age under the Age Discrimination Act of 1975 [42 U.S.C. 6101 et seq.], on the basis of handicap under section 504 of the Rehabilitation Act of 1973 [29 U.S.C. 794], on the basis of sex under Title IX of the Education Amendments of 1972 [20 U.S.C. 1681 et seq.], or on the basis of race, color, or national origin under Title VI of the Civil Rights Act of 1964 [42 U.S.C. 2000d et seq.]. [Section 508(a)(1)]. No person shall on the ground of sex or religion be excluded from participation in, be denied the benefits of, or be subjected to discrimination under any program or activity funded in whole or in part with funds made available under this Title. [Section 508(a)(2)]. |
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13 |
Within each state, the state health agency is responsible for the administration (or supervision of the administration) of programs carried out with allotments made to the State under Title V. [Section 509(b)]. |
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14 |
Division of State and Community Health Maternal and Child Health Bureau Health Resources and Services Administration 5600 Fishers Lane, Room 18N33 Rockville, Maryland 20857 Telephone: (301) 443-2204 |
Division of State and Community Health Maternal and Child Health Bureau Health Resources and Services Administration 5600
Fishers Lane, Room 11N35
Rockville, Maryland 20857 T5Guidance@hrsa.gov
|
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17 |
To help address health equity, states have the option to additionally select a demographic stratifier and priority population within the stratifier (i.e., stratifier sub-group) for each NPM that they can track over the five-year cycle. |
|
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18 |
f. A synopsis of the state's approach to eliminating health inequities and advancing just and fair conditions, and a description of how the state integrates or centers the lived experience of individuals, communities, families, and caregivers in its work; and |
f.
A synopsis of the state's approach to assuring
that MCH populations achieve their full health potential
|
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19 |
A state could consider stories of communities, individuals, and families of all structures including stories of fathers, grandparents, and diverse families. Stories of lived experience would demonstrate how Title V impacts the various communities and families in the state. For CSHCN, a state could consider plans for implementing strategies that address the four critical areas in the Blueprint for Change: health equity, family and child well-being and quality of life, access to services, and financing of services. This kind of success story would illustrate how any one of these critical areas enhances the quality of life and well-being for CSHCN and their families. |
A
state could consider stories of communities, individuals, and
other
family members
|
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20 |
a. The state’s demographics, geography, and urbanization; |
a.
The state’s demographics, geography, and
economy;
|
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20 |
i. Serving as a convener, collaborator, and partner in addressing MCH issues, including supporting partnerships to address upstream social determinants of health community health factors; |
i.
Serving as a convener, collaborator, and partner in addressing
MCH issues, including supporting partnerships to address |
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20 |
ii. Supporting coordinated, comprehensive and family-centered systems of services at state and local levels, which may include the implementation of MCHB’s Blueprint for Change: National Framework for a System of Services for Children and Youth with Special Health Care Needs or other population health strategies; |
ii.
Supporting coordinated, comprehensive and family-centered systems
of services at state and local levels |
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21 |
iii. Developing and utilizing innovative and evidence-based or -informed approaches to address cross-cutting issues that impact the health status of specific MCH populations and sub-populations, such as social determinants of health; and |
iii.
Developing and utilizing innovative and evidence-based or
-informed approaches to address cross-cutting issues that impact
the health status of specific MCH populations and
sub-populations, such as |
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21 |
Efforts to provide fair and equitable access for health care should be described. |
Efforts
to provide fair and |
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22 |
The capacity of the system to address the needs of underserved vulnerable populations should be described. |
The
capacity of the system to address the needs of medically
underserved
populations
and those at greater risk for poor outcomes
|
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22 |
The capacity of the system to address the needs of underserved CSHCN and those at greater risk for poor outcome and vulnerable CSHCN should be described |
The
capacity of the system to address the needs of medically
underserved
CSHCN
and those at greater risk for poor outcomes |
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24 |
In working to strengthen their Title V – Title XIX IAAs, states may wish to consider the strategies developed by the National Academy of State Health Policy (NASHP) under funding support provided by the HRSA/MCHB. engage with the HRSA-funded Center for MCH and Medicaid Partnerships. |
In
working to strengthen their Title V – Title XIX IAAs,
states may wish to |
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27 |
(ii) Engagement of stakeholders representing diverse communities, including those that face the greatest barriers to access and inequities in outcomes, for soliciting meaningful programmatic input; (iii) A structured priority-setting process that involves the diverse communities and families identified above; and |
(ii)
Engagement of stakeholders representing (iii)
A structured |
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27 |
(i) Level and extent of stakeholder involvement, including families, individuals with lived experience, and family-led organizations (such as Family-to-Family Health Information Centers (F2Fs), which should include the different MCH populations in a state, such as the American Indian/Alaska Native population, if appropriate. This summary would include meaningful engagement of communities, persons with lived experience, individuals, and families, including those of CSHCN, representing the diverse populations in the state including those who face the greatest barriers to access and the poorest outcomes, in the needs assessment and priority needs selection processes; |
(i)
Level and extent of stakeholder involvement, including families,
individuals,
|
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29 |
(Page 29) (2) An expanded discussion on the state’s capacity for serving CSHCN, which includes the Title V program’s ability to provide rehabilitation services for blind and disabled individuals under the age of 16 receiving benefits under Title XVI (the Supplemental Security Income for the Aged, Blind, and Disabled Program), to the extent that medical assistance for such services is not provided under Title XIX (Medicaid). If applicable, states may describe their capacity to serve CSHCN and their families by referencing the Blueprint for Change: A National Framework for a System of Services for Children and Youth with Special Health Care Needs. |
(2)
An expanded discussion on the state’s capacity for serving
CSHCN, which includes the Title V program’s ability to
provide rehabilitation services for blind and disabled
individuals under the age of 16 receiving benefits under Title
XVI (the Supplemental Security Income for the Aged, Blind, and
Disabled Program), to the extent that medical assistance for such
services is not provided under Title XIX (Medicaid). |
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30 |
(1) Strengths and needs of the Title V workforce (including the epidemiology workforce), including developing a diverse workforce that reflects the population served; |
(1)
Strengths and needs of the Title V workforce (including the
epidemiology workforce) |
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30 |
(1) Recruitment and retention of a qualified Title V staff to meet the state’s identified priorities, including those with lived experience; |
(1)
Recruitment and retention of a qualified Title V staff to meet
the state’s identified priorities, |
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30 |
SSDI funds support expansion of data linkages of key MCH datasets for analysis; improved access to and analysis of health equity data; and translation of data into action at the state/jurisdictional level. |
SSDI
funds support expansion of data linkages of key MCH datasets for
analysis; improved access to and analysis of |
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31 |
(3) Enhance the development, integration, and tracking of health equity and social determinants of health (SDoH) metrics to inform Title V programming; and |
(3)
Enhance the development, integration, and tracking of |
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34 |
(5) The extent to which diverse stakeholders, including families and constituents, as well as family and constituent-led organizations, were involved in ranking the broad set of identified needs and selecting the state’s final priorities. |
(5)
The extent to which |
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35 |
The state should describe the method by which funds are allocated among individuals, areas, and localities within the state for MCH services, particularly with support for specific populations in the state (e.g., Title V support for American Indian/Alaska Native populations). The state should highlight how funding supported family engagement in the Title V program, as well as how funding addressed health equity in services and program planning. |
The
state should describe the method by which funds are allocated
among |
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36 |
The state should describe the method by which funds are allocated among individuals, areas, and localities within the state for MCH services, particularly with support for specific populations in the state (e.g., Title V support for American Indian/Alaska Native populations). This discussion should include how families are engaged and financially supported by the program, as well as how funding is used to support health equity. |
(Page
36) The state should describe the method by which funds are
allocated among |
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36 |
b. Five-year Objectives – Objectives are statements of intention with which actual achievement and results can be measured and compared. SMARTIE objectives are Strategic, Measurable, Ambitious, Realistic, Time-bound, Inclusive, and Equitable. |
b.
Five-year Objectives – Objectives are statements of
intention with which actual achievement and results can be
measured and compared. SMART |
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38 |
This discussion will likely build on the high-level discussion in the Five-Year Needs Assessment Summary and include more detailed descriptions on how family partnerships, addressing social determinants of health, expanding MCH data capacity, enhancing public health surveillance/reporting systems, and securing a qualified and well-trained MCH workforce are being implemented in Title V program activities in each domain. |
This
discussion will likely build on the high-level discussion in the
Five-Year Needs Assessment Summary and include more detailed
descriptions on how family partnerships, addressing community
health factors |
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39 |
6. Assess the overall effectiveness of the implemented program strategies and approaches in addressing the identified MCH population needs and in promoting continuous quality program improvement; 7. Demonstrate the value of family and community partnerships in improving health outcomes across all domains; |
6. Assess the overall effectiveness of the implemented program strategies and approaches in addressing the identified MCH population needs and in promoting continuous quality program improvement; and 7.
Demonstrate the value of family and community partnerships in
improving health outcomes across all domains |
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39 |
8. Discuss efforts to address health equity to assure services for its MCH populations; and 9. In the CSHCN population domain, discuss how state priorities and completed activities align with the four critical areas in The Blueprint for Change: health equity, family and child well-being and quality of life, access to services, and financing of services |
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39 |
1. Discuss updates to the Five-year Action Plan Table that reflect new or revised priority needs, evidence-based or -informed strategies or performance measures for driving improved performance; and 2. Explain the planned approach to engage family and community partnerships to improve health and well-being across all domains; |
1. Discuss updates to the Five-year Action Plan Table that reflect new or revised priority needs, evidence-based or -informed strategies or performance measures for driving improved performance; and 2.
Explain the planned approach to engage family and community
partnerships to improve health and well-being across all
domains |
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39 |
8. Discuss efforts to address health equity to assure services for its MCH populations; and 9. In the CSHCN population domain, discuss how state priorities and planned activities align with the four critical areas in The Blueprint for Change: health equity, family and child well-being and quality of life, access to services, and financing of services |
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40 |
(7) Outreach to Specific Stakeholders (e.g., MCH Training Grantees, F2Fs, organizations providing services to the most underserved populations such as FQHCs, immigrant-serving organizations, community-based agencies, etc.); and |
(7)
Outreach to Specific Stakeholders (e.g., MCH Training Grantees,
F2Fs, organizations providing services to the most |
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40 |
The state must complete and submit a Technical Assistance Request Form to receive MCHB supported technical assistance. This form is available upon request from the MCHB Project Officer. |
The
state |
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81 |
Pregnant Woman – A person from the time of conception to 60 days after birth, delivery, or expulsion of fetus. |
Pregnant
Woman – A |
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83 |
Definitions are provided below for each level of service. In developing systems of care, states should assure that they are family- centered, community-based and culturally competent. |
Definitions
are provided below for each level of service. In developing
systems of care, states should assure that they are family-
centered, community-based and coordinated
|
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83 |
Enabling services include, but are not limited to: case management, care coordination, referrals, translation/interpretation, transportation, eligibility assistance, health education for individuals or families, environmental health risk reduction lead abatement, health literacy, and outreach. |
Enabling
services include, but are not limited to: case management, care
coordination, referrals, translation/interpretation,
transportation, eligibility assistance, health education for
individuals or families, |
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86 |
• Train non-licensed health professionals, including CSHCN parent consultants, to address the social determinants of health (count estimated annual case-loads of those trained or % of professionals trained as a proxy for % of children potentially reached). |
• Train
non-licensed health professionals, including CSHCN parent
consultants, to address |
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86 |
• Partner with Medicaid to implement a Hispanic-focused care coordination program (count Hispanic CSHCN covered by Medicaid) |
• Partner
with Medicaid to implement a |
File Type | application/vnd.openxmlformats-officedocument.wordprocessingml.document |
Author | Chambers, Lauren (HRSA) |
File Modified | 0000-00-00 |
File Created | 2025-05-19 |